Perinatal Hospice

• Perinatal Hospice For the pregnant patient who has learned that her baby has a lethal fetal anomaly, we propose a model of care that incorporates the strengths of prenatal diagnosis, perinatal grief management, and hospice care to address the family's needs.
  April 24, 2002
• Be Not Afraid is an online outreach to parents who have received a poor or difficult prenatal diagnosis. The family stories, articles, and links within this site are presented as a resource for those who may have been asked to choose between terminating a pregnancy or continuing on despite the diagnosis.

  This is a website that is simply LOADED with helpful material, including many lethal and non-lethal diagnoses, and the personal stories that go with these babies and their moms and dads. You may have patients or friends who need these stories.

  Modern hospice care for adults originated in the 1960s in response to a realization that end of life issues for terminally ill patients were being inadequately addressed with traditional approaches. This philosophy of care rapidly expanded over the ensuing three decades, including application to the management of families with terminally ill children.

• Perinatal Hospice: A gift of time "You matter because you are you, and you matter until the last moment of your life." This website contains information and resources for those carrying a child with a difficult prenatal diagnosis.
• Heartlink For a great list or articles, resources and family blogs about perinatal hospice, go to the resource page set up by Focus on the Family: www.heartlink.org/hottopics/A000000710.cfm.
• Encouragement For those parents with a Down Syndrome chilld, there is enccouragment at: http://idscforlife.wordpress.com/.
• Perinatal Hospice Links Find here a list of links with real-life stories of families who have personal, first-hand experience with perinatal hospice.